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International Birth Defects Information System


Online Parent Journal
For Children with Special Health Care Needs
 
 
The Parent Journal was developed after identifying barriers to care among children with special health care needs. One barrier identified was a lack of communication and understanding between parents of children with special health care needs and their health care providers, and among the health care providers themselves. This journal will enable you to keep up-to-date, accurate information on your child's ongoing medical conditions as well as activities of daily living that will be of interest to anyone involved in the care of your child. The pages of this journal cover everything from emergency information to comfort needs. Please print any sections that you feel will be of use.
 
 
Table of Contents
(Click on the links below to open and print any or all of the pages in this journal)
 
  1. Emergency Information Form
  2. Basic Information
    1. Child's Profile
    2. Insurance Information
    3. Primary Care Physician
    4. Consultants Sheet
    5. Current Status of Sensory
      & Ability Information
    6. Pharmacy
  3. Medical Information
    1. Forget Me Nots
    2. Problem List
    3. Medication Sheet
  4. Doctor's Visit Information
    1. Questions to Ask
    2. Help me to Remember Sheet
  5. Calendar Sheet
  6. Equipment, Supplies, Services
  7. Diagnostic Test
    1. Laboratory test
    2. X-rays
    3. EEG/CT Scans/MRI
  8. Commonly Encountered Medical Terms
We recommend printing and storing all the above sheets in a journal or folder. You may also use the journal to store copies of lab results, x-ray reports or discharge summaries. Take the journal with you to physician appointments and show it to the physician.

For more information or to leave feedback, Contact Us.

 
 
Supported in part by project #5 H46 MC 0016502 from the Maternal Child Health Bureau (Title V, Social Security Act, Health Resources and Services Administration).


University of South Alabama
 Birth Defects Genetics Center - Mobile, Alabama 36688-0002 / 251-460-7500
For questions or comments contact us or call toll free 1-800-624-1865
Date last changed: October 18, 2004 10:18 AM
http://www.southalabama.edu/genetics